U.S.A.

Arkansas

Arkansas Children’s Hospital
The Multidisciplinary Connective Tissue Clinic
1 Children’s Way
Little Rock, AR 72202

Medical Director:
R. Thomas Collins II, MD

Contact Information:

Beth Martin, RN
Phone: 501-3640-2088
Email: eamartin@uams.edu

California

UCLA Health
Ahmanson/UCLA Adult Congenital

Heart Disease Center
Marfan Syndrome Clinic
UCLA-Cardiovascular Center
100 Medical Plaza, Suite 630
Los Angeles, Ca 90095

Medical Director:

Jamil Aboulhosn, MD

Contact Information:
Pamela Miner, NP
Phone: 310-794-9629
Email: pminer@mednet.ucla.edu and/or achdc@mednet.ucla.edu

Cedars-Sinai Medical Center
Marfan Syndrome Center
8700 Beverly Boulevard
PACT Suite 400
Los Angeles, CA 90048

Medical Directors:
Ora K. Gordon, MD
Robert J. Siegel, MD

Contact Information:
Mitchel Pariani, MS, CGC
Phone: 310-423-9861
Email: Mitchel.pariani@cshs.org
Appointments: 310-423-9914

Loma Linda University Medical Center
Heart and Imaging Center
900 E. Washington Street, Suite 150
Colton, Ca 92324
(Serving Adults Only)

Medical Director:
Padmini Varadarajan, MD

Contact Information:
Amy Singh, RN
Phone: 909-835-1200 and/or 888-558-2713

Loma Linda University Medical Center
International Heart Institute-Pediatric Cardiology
11234 Anderson Street, Suite 1617
Loma Linda, Ca 92354
(Serving Adults Only)

Medical Director:
Ranae Larsen, MD

Contact Information:
Phone: 909-558-4207

Stanford University Medical Center
Stanford Marfan Syndrome & Aortic Center
300 Pasteur Drive
Room H2157
Stanford, CA 94305

Medical Director:
David H. Liang, MD, PhD

Contact Information:
Sunny Pellone, Center Coordinator
Phone: 650-725-8246
Email: spellone@stanfordmed.org

Colorado

Children’s Hospital Colorado
Cardiac Genetics Clinic
13123 East 16th Avenue
B100
Aurora, CO 80045

Medical Director:
Kathryn Chatfield, MD, PhD

Contact Information:
Curtis R. Coughlin, CGC
Phone: 303-724-2310
Email: curtis.coughlin@childrenscolorado.org

University of Colorado-Anschutz Medical Campus
Marfan Syndrome and Related Disorders Clinic
Anschutz Inpatient Pavilion
12605 E. 16th Avenue
Aurora, CO 80045
(Children’s appointments are coordinated at Children’s Hospital)

Medical Director:
Amber Khanna, MD

Contact Information:
Tammy Rogers
Phone: 720-848-6517
Email: tammy.rogers@uchealth.org

Florida

Joe DiMaggio Children’s Hospital
Division of Genetics
1150 N. 35th Avenue, Suite 490

Hollywood, FL 33021

Medical Directors:
Roman Yusupov, MD
Kak-Chen Chan, MD

Contact Information:
Tala Geith, RN
Phone: 954-265-3437
Phone for dedicated Marfan Syndrome program appointments: 855-265-4MFS and/or 954-265-4MFS (4637)
Alternative numbers for appointments: 954-265-6319

Georgia

Sibley Heart Center Cardiology-Children’s Healthcare of Atlanta
Aortopathy Clinic
5455 Meridian MarK Road, Suite 530
Atlanta, GA 30342
(Serving Only to The Age of 21 Years)

Medical Director:
Denver Sallee, MD

Contact Information:
Leslie Bishop, NP
Phone: 404-256-2593
Email: bishopl@kidsheart.com

Illinois

Ann & Robert H. Lurie Children’s Hospital of Chicago
The Connective Tissue Disorder Clinic
225 E. Chicago Avenue, Box 59
Chicago, IL 60613
(Serving Only to The Age of 21 Years)

Medical Directors:
Barbara K. Burton, MD (Genetics)
Luciana T. Young, MD (Cardiology)

Contact Information:
Jessica Bucher, MS, CGC (Genetics)
Phone: 312-227-6123
Email: jbucher@luriechildrens.org
Elizabeth S. Cappella, MSN, APN, CPNP (Cardiology)
Phone: 312-227-4641
Email: ecappella@luriechildrens.org
Appointments: 312-227-6120

Northwestern Memorial Hospital
Northwestern University Feinberg School of Medicine
Marfan Syndrome and Related Disorders Clinic
675 N. St. Clair Street, Suite 19-100
Chicago, IL 60611
(Serving Adults Only)

Medical Directors:
S. Chris Malaisrie, MD
Marla Mendelson, MD

Contact Information:
Amy Ochs, MSN, APN, CNP
Phone: 312-695-5893
Email: aochs@nmh.org

University of Chicago Medicine
The Marfan Syndrome Center
5841 South Maryland Avenue
Room C104 (Section of Pediatric Cardiology)
Chicago, IL 60637

Medical Directors:
Peter Varga, MD
Darrel Waggoner, MD

Contact Information:
Lisa Dellefave-Castillo, MS, CGC
Phone: 773-702-4310 (Genetics)
Phone: 773-702-6172 (Pediatric Cardiology)
Email: ldellefa@medicine.bsd.uchicago.edu

Indiana

Peyton Manning Children’s Hospital at St. Vincent
Connective Tissue Disorders Clinic
8402 Harcourt Road, Suite 300
Indianapolis, IN 46260

Medical Director:
Luis F. Escobar, MD

Contact Information:
Megan Tucker, MS, LGC
Phone: 317-338-5288
Email: mxtucker@stvincent.org

Riley Hospital for Children-Indiana University Health
Indiana University Department of Medical and Molecular Genetics
975 W. Walnut Street, 1B-130
Indianapolis, IN 46202

(An echocardiogram and an ophthalmology evaluation should be completed prior to referral to the Medical Genetics Clinic)

Medical Director:
David D. Weaver, MD

Contact Information:
Katelyn Payne, RN, CGC
Phone: 317-274-2450
Email: paynekk@iu.edu
Appointments: 317-274-3966, Kenya Alexander

Kentucky

University of Louisville
Marfan Syndrome and Connective Tissue Disease Clinic
601 South Floyd Street, Suite 602
Louisville, KY 40202
(Serving Only to The Age of 21 years)

Medical Director:
Lucinda Wright, MD

Contact Information:
Erin Eckenfels
Phone: 502-585-4802
Email: erine@pcaheart.org

Maryland

John Hopkins Hospital
Connective Tissue and Related Disorder Clinic
600 N. Wolfe Street
Blalock 1008
Baltimore, MD 21287

Medical Director:
Hal C. Dietz, MD

Contact Information:
Gretchen Oswald, MS, CGC
Phone: 410-955-0316
Email: goswald1@jhmi.edu
Appointments: 410-955-3071, Option 1

Massachusetts

Boston Children’s Hospital
Marfan Syndrome, Connective Tissue, and Related Disorders Program
Department of Cardiology
300 Longwood Avenue
Boston, Ma 02115

Medical Directors:
Ronald V. Lacro, MD
Michael N. Singh, MD

Contact Information:
Martha King, RN
Phone: 617-355-8794
Email: martha.king@cardio.chboston.org
Appointments: 617-355-8794, Liz Berryan

Brigham and Women’s Hospital
Marfan Syndrome and Related Connective Tissue Disorders Clinic
75 Francis Street
Boston, MA 02115
(Serving Only to The Age of 18 Years)

Medical Directors:
Michael N. Singh
Natasha Frank, MD

Contact Information:
Liz Berryan, Cardiology Administrative Assistent
Phone: 617-355-8794
Appointments: 857-307-4040

Michigan

University Of Michigan Medical Center
University of Michigan Aortic And Genetic Syndrome Center
5143 Cardiovascular Center Drive
Ann Arbor, MI 48109
Medical Directors:
Anna M. Booher, MD
Himanshu J. Patel, MD

Contact Information:
Mary Passow, RN, BSN
Diane Salata, RN
Phone: 888-287-1082

Minnesota

 

Mayo Clinic
Marfan and Thoracic Aorta Clinic
200 First Street SW
Rochester, MN 55905

Medical Directors:
Juan Bowen, MD
Joseph Dearani, MD

Contact Information:
Mary Silhasek, RN
Phone: 507-284-3681
Email: silhasek.mary@mayo.edu
Appointments: 507-538-8124

 

Missouri

 

 

Washington University School of Medicine, Barnes-Jewish Hospital
Marfan Syndrome Clinic and Center for Genetically Triggered Aortic Diseases
4921 Parkview Place, Suite 8A
St. Louis, MO 63110
(Serving people 16 and older)

Medical Director:
Alan C. Braverman, MD, FACC

Geneticist:
Marcia Willing, MD

Contact Information:
Dana Gima, RN, BSN
Barb Stehman, RN, BSN
Phone: 314-362-1291 and/or 888-210-8375

 

St. Louis Children’s Hospital
1 Children’s Place
St. Louis, MO 63110

Geneticist:
Marcia Willing, MD

Contact Information:
Phone: 314-454-6095

 

 

New Jersey

 

 

Rutgers Robert Wood Johnson Medical School
Rutgers Robert Wood Johnson Aortic Clinic
1 Robert Wood Johnson Place
New Brunswick, NJ 08901

Medical Director:
Leonard Y. Lee, MD

Contact Information:
Joan Zenuch
Phone: 732-235-7806
Email: joan.zenuch@rwjms.rutgers.edu

 

New York

 

 

Mount Sinai Medical Center
Cardiovascular Genetics Program
1468 Madison Avenue
Annenberg Building 3rd Floor
Division of Pediatric Cardiology
New York, NY 10029

Medical Director:
Bruce D. Gelb, MD

Contact Information:
Meghan MacNeal, MS, MPH
Phone: meghan.macneal@mssm.edu

 

New York University-Langone Medical Center
NYULMC Aortic Diseases Center
530 First Avenue, Suite 9V
New York, NY 10018
(Serving Adults Only)

Medical Director:
Abe DeAnda, MD

Contact Information:
Patricia Ursomanno, PhD, RN, ANP
Phone: 212-263-1064 and/or 866-399-HEART
Email: patricia.ursomanno@nyumc.org

 

North Shore-LIJ Health System
Marfan Center at Steven and Alexandra Cohen
Children’s Medical Center of New York
269-01 76th Avenue
New Hyde Park, NY 11040

Medical Directors:
Angela Romano, MD
Joyce Fox, MD
Scott Pilgrim, MD

Contact Information:
Joanne Gubitosi, RN, BSN
Phone: 718-470-7350
Email: jgubitos@nshs.edu

 

Winthrop University Hospital
Winthrop Aortic Institute
120 Mineola Boulevard, Suite 500
Mineola, NY 11501

Medical Director:
George Gubernikoff, MD

Contact Information:
Diane Onorato
Phone: 516-663-2046
Email: donorato@winthrop.org

 

Duke University Medical Center
Pediatric Medical Genetics and Pediatric Cardiology
2301 Erwin Road
Box #103857
Durham, NC 27705

Medical Directors:
Stephanie B. Wechsler, MD (Cardiology and Genetics)
Marie T. McDonald, MD (Genetics)

Contact Information:
Lis Heise, MS, CGC
Phone: 919-668-2196

 

Ohio

 

Cincinnati Children’s Hospital Medical Center
Cardiovascular Genetics Clinic
3333 Burnet Avenue
Cincinnati, OH 45229

Medical Director:
John Lyn Jefferies, MD, MPH

Contact Information:
Amy Shikany, MS, CGC
Email: amy.garrison@cchmc.org

 

Cleveland Clinic
Marfan Syndrome and connective Tissue Disorders Clinic
9500 Euclid Avenue, J4-1
Cleveland, OH 44195

Medical Director:
Lars G. Svensson, MD, PhD

Contact Information:
Rhoda Sweeney
Phone: 216-445-4813
Email: sweener@ccf.org

 

Nationwide Children’s Hospital
Marfan Screening Clinic
700 Children’s Drive
Columbus, OH 43205

Medical Director:
Dennis Bartholomew, MD

Contact Information:
Sawona Biswas, CGC
Phone: 614 355-3619
Email: sawona.biswas@nationwidechildrens.org
Appointments: 614-722-3535

 

University Hospitals Case Medical Center
connective Tissue Disorder Clinic
Center for Human Genetics
11100 Euclid Avenue
Lakeside 1500
Cleveland, OH 44106

Medical Director:
Anna Mitchell, MD, PhD

Contact Information:
Sarah Grimes Hodges, MS, CGC
Phone: 216-844-3936
Email: sarah.grimes@uhhospitals.org

 

Children’s Hospital of Philadelphia
Connective Tissue Clinic
34th and Civic Center Boulevard
Philadelphia, PA 19104
(Serving children to 18 years)

Medical Director:
Paige Kaplan, MD

Contact Information:
Colleen Clarke, MS CGC
Phone: 215-590-2825
Email: clarkec@email.chop.edu
Appointments: 215-590-3376

 

University of Pennsylvania Health System
Marfan Syndrome and Related Conditions Clinic
Perelman Center for Advanced Medicine
34th Street and Civic Center Boulevard, First Floor Philadelphia, PA 19104
(Serving adults and children 12 years and over)

Medical Director:
Reed E. Pyeritz, MD, PhD

Contact Information:
Meredith Breen, Clinic Coordinator
Phone: 215-662-4740
Email: meredith.breen@uphs.upenn.edu

 

Texas

 

Texas Children’s Hospital/Baylor College of Medicine
Texas Children’s Hospital Cardiovascular
Genetics Clinic
6621 Fannin Street
Houston, TX. 77030

Medical Director:
Shaine A. Morris, MD, MPH

Contact Information:
Andi Lewis, MS
Phone: 832-822-1723
Email: amlewis@bcm.edu

 

University of Texas Physicians
Medical Genetics and Multidisciplinary Aortic and Vascular Disease Clinic
6410 Fannin Street, Suite 600
Houston, TX 77030

Medical Director:
Dianna M. Milewicz, MD, PhD

Contact Information:
Alana Cecchi, MS, CGC
Phone: 713-500-6865
Email: alana.c.cecchi@uth.tmc.edu

 

Utah

 

Primary Children’s Hospital/Intermountain Medical Center and University of Utah Hospital
Marfan Syndrome and Aortopathy Center
81 Mario Capecchi Drive
Salt Lake City, UT 84113

Medical Director:
Arvind Hoskoppal, MD

Contact Information:
Louise Jahn, RN
Phone: 801-662-5462
Email: louise.jahn@hsc.utah.edu
Appointments:
Primary Children’s Hospital: 801-662-5400
Intermountain Medical Center: 801-507-4000
University of Utah Hospital: 801-858-7676

 

Washington

 

Seattle Children’s Hospital
Seattle Children’s Heart Center
4800 Sandpoint Way NE
Seattle, WA 98105
(Serving Children Until Age 21)

Medical Director:
Mark Lewin, MD

Contact Information:
Camie Spieker, RN, BSN
Phone: 206-987-3693
Email: camie.spieker@seattlechildrens.org
Appointments: 206-987-2015
Scheduling.center@seattlechildren.org

 

University of Washington Medical Center
Genetic Medicine Clinic
1959 NE Pacific Street
Box #357720
Seattle, WA 98195

Medical Director:
Fuki Hisama, MD

Contact Information:
Debbie Olson, Support Supervisor
Phone: 206-598-4030
Email: olsondl@u.washington.edu

Wisconsin

Children’s Hospital of Wisconsin and The Medical College of Wisconsin
The Wisconsin Marfan and Related Connective Tissue Disorder Program
9000 W. Wisconsin Avenue
Milwaukee, WI 53226
Medical Director:
Michael Earing, MD

Contact Information:
Lindsey Katzmark, APNP
Phone: 414-266-4757
Email: lkatzmark@chw.org
Appointments: 414-607-5280

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